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ELA Info
Event news
- Hundreds of thousands of schoolchildren all over France took part in the traditional ELA Dictation this morning. Here’s a look back at a morning full of emotion for many people. The stories of the day with photos…
- ELA at the gene therapy Meeting concerning rare diseases in Tokyo, the 16th and 17th of January
- Over 320 people at the ELA General Assembly and Families/Scientists meeting
- 18th edition of the Evian Masters, again under the sign of solidarity with a beautiful highlighted ELA
Events
- Inauguration of Indian Ocean ELA on Réunion Island
- Hundreds of thousands of schoolchildren all over France took part in the traditional ELA Dictation this morning. Here’s a look back at a morning full of emotion for many people. The stories of the day with photos…
- ELA at the gene therapy Meeting concerning rare diseases in Tokyo, the 16th and 17th of January
- Over 320 people at the ELA General Assembly and Families/Scientists meeting
- Zinedine Zidane climbs the Mont-Blanc for ELA
- 18th edition of the Evian Masters, again under the sign of solidarity with a beautiful highlighted ELA
- Real Madrid and ELA together for children with leukodystrophies
- The French World Cup team helps to fight against leukodystrophies
- Zinédine Zidane celebrates Europe with ELA: the match of solidarity
Families
- Report on the 23rd General Assembly and Families/Researchers Conference – VIDEO ON LINE!
- ELA families were invited to the Elysée Palace
- The Orphanet encyclopaedia is enriched by information about the adult Refsum disease
- June 6, 2012, ELA families, sponsors and ambassadors gathered in Paris Disneyland. Back in pictures …
Family News
Research News
- A new study is available on Leuconnect!
- Launch of a clinical trial for adult patients suffering from adrenomyeloneuropathy
Sponsors
Study
- A new study is available on Leuconnect!
- Research projects funded by ELA in 2014
- Register to the 2015 ELA Families / Scientists Meeting
- Join us for the 3rd ELA Scientific Congress
- Launch of the MD1003 trial in adrenomyeloneuropathy in France and Spain
- Characteristics of Krabbe disease in adults
- Study of cerebral metabolic impairment in metachromatic leukodystrophy
- A derivative of vitamin E aids in the repair of myelin in multiple sclerosis
- Mesenchymal stromal cell transplant induces re-myelination in a multiple sclerosis model
- Disruption of neovascularization in Krabbe disease
- Download the conference report of the 2014 ELA Families / Scientists meeting
- Neuronal inflammation induced in a leukomalacia model disrupts the development of myelin cells
- Glutathione imbalance in patients suffering from adrenoleukodystrophy
- Pioglitazone halts nerve degeneration in mice with adrenoleukodystrophy
- Screening for adrenoleukodystrophy in adult men suffering from Addison’s disease
- Disruption of mitochondrial function in adrenoleukodystrophy
- Launch of a clinical trial for adult patients suffering from adrenomyeloneuropathy
- Download the scientific report of the 2013 UK Scientific Workshop on Krabbe Disease
- POLD and HDLS diseases form a single disease entity
- ALD Connect, a co-operative network for adrenoleukodystrophy
- A clinical trial: the role of L-DOPA in the treatment of movement disorders in patients suffering from leukodystrophy
- A clinical trial testing the effect of betaine in infantile Refsum disease and neonatal adrenoleukodystrophy
- Psychosine, a new predictive marker for Krabbe disease?
- Vulnerability of developing myelin cells in the brain during the neonatal stage
- ELA international symposium on MRI technologies
- The CLCN2 gene, responsible of a new undetermined leukodystrophy: leukoencephalopathy with intramyelinic edema
- The challenges for research into leukodystrophies
- 1st ELA Scientific Day
- Consequences of endogenous psychosine accumulation for Krabbe disease
- ELA celebrates 20 years of research into leukodystrophies
- Enzymotherapy for MLD leukodystrophy: the opening of a French site
- Successful gene therapy for three children suffering from metachromatic leukodystrophy
- Elevated proinflammatory cytokines in patients suffering from Aicardi-Goutières syndrome
- Launch of the 2014 call for research proposals of the ELA Foundation
- Download the program of the 2014 ELA Families / Scientists meeting
- 2014 Calendar of the ELA Foundation
- Role of X chromosome inactivation in Chinese women carrying the mutation causing adrenoleukodystrophy
- Activation of the cellular stress response by small molecules
- Register to the 2014 ELA Families / Scientists Meeting
- Clinical trial for AMN patients: test of an innovative drug replacing pioglitazone
- Research projects funded by ELA in 2013
- Augusto Odone, whose fight inspired the movie “Lorenzo’s oil” released in 1993 and nominated twice for an Oscar, dies
- News about the four children with childhood cerebral adrenoleukodystrophy treated by gene therapy
- New gene therapy trial for adrenoleukodystrophy
- Launching of a clinical trial for adult patients suffering from adrenomyeloneuropathy
- Looking back at the LeukoTreat public conference in Berlin
- Meeting of the Foundation’s regulatory bodies
- LeukoTreat public conference – Berlin July 2, 2013
- Launch of the 2013 call for research proposals of the ELA Foundation
- A monitoring committee keeps watch over the state of progress of the biobank
- The ELA biobank, a research pivot
- Stem cell therapy for children with Pelizaeus-Merzbacher disease
- Advances in metachromatic leukodystrophy described by Pr. Volkmar Gieselmann
- Effect of bezafibrate in adrenomyeloneuropathy
- Advances in medical imaging for leukodystrophies described by Pr. Raphael Schiffmann
- 20 years on myelin research : the interview of Pr Charles ffrench-Constant
- Effect of high dose glyceryltriacetate in Canavan disease
- New clinical trial for adrenoleukodystrophy : effect of sobetirome on very long chain fatty acids
- Over 320 people at the ELA General Assembly and Families/Scientists meeting
- 2013 Calendar of the ELA Foundation
- Launch of the intracerebral gene therapy trial for metachromatic leukodystrophy
- Research on adrenoleukodystrophy : looking back on Pr. Hugo Moser’s career
- The importance of a clinical database and a biobank for leukodystrophies: an interview with Professor Odile Boespflug-Tanguy
- Download the program of the 2013 ELA Families / Scientists meeting
- Gene therapy and adrenoleukodystrophy: an interview with Dr. Nathalie Cartier
- Register to the 2013 ELA Families / Scientists Meeting
- Meetings of the regulatory authorities of the ELA Foundation
- The research projects financed by ELA in 2012
- Looking back over noteworthy facts pertaining to research into leukodystrophies with Pr. Patrick Aubourg
- Gene therapy and adrenoleukodystrophy: news of the four treated children
- 1st Symposium on Adrenomyeloneuropathy
- Renewal instances of the ELA Foundation
- Take part to the Leukotreat Survey
- Identification of the POLR3A gene as being responsible for the TACH and LO hypomyelinating leukodystrophies and for the 4H syndrome
- Passing of Dr. James Garbern, member of the Scientific Committee of the ELA Foundation
