Helping and supporting families
affected by the disease
Leukodystrophy is a rare, serious and progressive genetic disease that disrupts the lives of those affected and their families. Above all, ELA offers a place where people can listen to each other and feel less alone in the face of the disease and its consequences. The association is also a privileged interlocutor on which families can rely to find administrative, social, psychological, material or financial support. ELA provides them with information that will enable them to better understand the disease and its evolution. Since its creation, ELA invested €15.7 million in supporting families.