TESTIMONY

Hugo and Arthur, two brothers with opposite destinies

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ELA key figures

30+

years of commitment

601

research programs supported since 1992

51.9 M€

invested in research since 1992

17.9 M€

devoted to supporting families since 1992


Our missions

Thanks to your donations, we can unite against leukodystrophies
with clear objectives:

Helping
and supporting
families

Supporting
medical research

Raising
public awareness

Developing its action
at the international level

DISCOVER OUR MISSIONS

News

All News
EVENT
Prix Ambassadeur ELA 2026

2026 ELA Ambassador Award: a ceremony celebrating commitment

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EVENT
Journée internationale

Companies still mobilised for ELA on 18 June!

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FAMILIES

ELA and Gîtes de France sign a partnership agreement to promote accessible tourism

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TESTIMONY

Looking back on 30 years of commitment to ELA

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Our campaigns

At work, at school or somewhere else,
here is how you can help us!