TESTIMONY

Together, we’re working towards a single goal: beating disease, even the rarest one.

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Our missions

Thanks to your donations, we can unite against leukodystrophies
with clear objectives:

Helping
and supporting
families

Supporting
medical research

Raising
public awareness

Developing its action
at the international level

DISCOVER OUR MISSIONS

News

All News
EVENT

Discover ELA’s new mobilization anthem!

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FAMILIES

Family weekend at Center Parcs

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RESEARCH

International Rare Disease Day: the policy of the 1st child who saves the 2nd is intolerable.

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EVENT

In 2024, take part in “Wear your trainers at work”!

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Our campaigns

At work, at school or somewhere else,
here is how you can help us!