Four families from the association had the pleasure of taking part in the Élysée Palace Christmas on 11 December in Paris.
Every year, the Élysée Palace invites several hundred children to take part in a festive and convivial event. This year’s guests included Arthur, Damon, Malone, Maxence and Noam, all of whom have leukodystrophy. Accompanied by their parents and our President Crystelle Cottart, they were welcomed by a Republican Guard brass band in the courtyard of the Élysée Palace.
The families first had the opportunity to have their photo taken with their favourite characters such as Minnie, Olaf, Spider-Man and Stitch. Then it was time for the Paradis Latin dancers! Created by choreographer Kamel Ouali for all ages from 3 upwards, ‘Mon Premier Cabaret’ transported young and old alike into a fantasy world populated by superheroes, benevolent witches and princesses. The show ended with the traditional visit from Father Christmas.
The families were then able to exchange a few words with the President of the Republic and his wife and take a few souvenir photos. To round off the day, the children were invited to enjoy a snack before receiving a gift before their departure.
Everyone left with stars in their eyes and precious memories in their heads.
We warmly thank Emmanuel Macron for his invitation, and his wife Brigitte Macron for her support for our fight since 2016.