30 years of ELA, 30 years of fighting

Rock solid determination

This year we are commemorating 30 years of ELA, which we are sharing with the French families, and sponsors, but also with our friends from other ELA associations who have joined us throughout these 30 years: ELA Belgium, ELA Switzerland, ELA Spain, ELA Luxembourg, ELA Italy and ELA Germany.

These years have not been easy, they have had their share of small and big pains such as the loss of a loved one, but also moments of pride, success, conviviality and even joy such as during important events, the highlights of ELA.

We commemorate 30 years of fighting lead with rock solid determination, 30 years of perseverance, loyalty and constancy despite tears, doubts and pain. We think of all those who fight daily against the disease, of all those, too many, who have left us during these 30 years.

To you who are fighting this terrible disease. To you, the families who are coping with this determination that compels admiration. It is to you that we dedicate the celebration of these 30 years of struggle. You are our motivation, our energy and our engine!

Being seen, known and recognised were the essential steps for a rare disease such as leukodystrophy to reach the widest possible audience in order to advance research. Thanks to you, families, researchers, partners, sponsors… in the fields of visibility, commitment, solidarity and the advancement of research, we have scored goals! With you, things are going well, so life goes on! The fight too!