Leuconnect: an online clinical research support platform
Under the impetus of families, the association ELA created Leuconnect, an online clinical research support platform on leukodystrophies. It allows patients and their families to be part of a cohort and to access more easily to online clinical studies. The platform is available in seven languages: French, English, Spanish, Dutch, Italian, German and Luxembourgish.
Leuconnect gathers patients from all countries to accelerate research and gives them a secured space to meet, exchange and act together.