{"id":8256,"date":"2022-06-28T16:09:28","date_gmt":"2022-06-28T14:09:28","guid":{"rendered":"https:\/\/ela-asso.com\/?page_id=8256"},"modified":"2025-05-14T17:01:18","modified_gmt":"2025-05-14T15:01:18","slug":"support-concrete-projects","status":"publish","type":"page","link":"https:\/\/ela-asso.com\/en\/mtbe\/support-concrete-projects\/","title":{"rendered":"Support concrete projects"},"content":{"rendered":"\n\n
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What are your donations used for?<\/h2>\n

By participating in the “Wear your trainers and beat disease at work” operation, you contribute to the financing of medical research on leukodystrophies and to the support of families affected by the disease.<\/p>\n\n <\/div>\n<\/div>\n\n\n\n\n\n

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Our family support projects<\/h3>\n\n <\/div>\n<\/div>\n\n\n\n\n
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\n \"Weekend\n <\/div>\n
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\n Weekend of respite for ELA families <\/h3>\n

\n During a weekend, families benefit from a pleasant setting, leisure facilities adapted for their child, and activities to share moments of well-being and conviviality. \n <\/p>\n\n \n \n \n <\/path>\n <\/svg>\n\n Read the project sheet<\/span>\n \n <\/a>\n \n <\/div>\n \n <\/div>\n<\/div>\n\n\n\n\n

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\n Technical aids <\/h3>\n

\n Families are helped to find and finance appropriate technical aids to compensate for the activity limitations encountered by people with the disease. \n <\/p>\n\n \n \n <\/path>\n <\/svg>\n\n Read the project sheet<\/span>\n \n <\/a>\n <\/div>\n\n

\n \"Aides\n <\/div>\n\n \n <\/div>\n<\/div>\n\n\n\n\n
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\n \"\"\n <\/div>\n
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\n Home adaptation <\/h3>\n

\n People affected by leukodystrophy and their families can enjoy a safe and secure environment. \n <\/p>\n\n \n \n \n <\/path>\n <\/svg>\n\n Read the project sheet<\/span>\n \n <\/a>\n \n <\/div>\n \n <\/div>\n<\/div>\n\n\n\n\n

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\n Vehicle adaptation <\/h3>\n

\n People who are ill benefit from a form of transport adapted to their disability, enabling them to get around on a daily basis. Access to activities and social links are restored and maintained. \n <\/p>\n\n \n \n <\/path>\n <\/svg>\n\n Read the project sheet<\/span>\n \n <\/a>\n <\/div>\n\n

\n \"\"\n <\/div>\n\n \n <\/div>\n<\/div>\n\n\n\n\n
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\n \"Activit\u00e9\n <\/div>\n
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\n Sporting\/health and wellness activity <\/h3>\n

\n Regular physical activity is known to improve physical condition, social life, self-image, and overall health. \n <\/p>\n\n \n \n \n <\/path>\n <\/svg>\n\n Read the project sheet<\/span>\n \n <\/a>\n \n <\/div>\n \n <\/div>\n<\/div>\n\n\n\n\n\n

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Our research support projects<\/h3>\n\n <\/div>\n<\/div>\n\n\n\n\n
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\n Identify a new pathogen in Canavan disease <\/h3>\n

\n Several mouse models are being studied to determine whether reducing NAAG concentrations can lessen damage to the myelin sheath. \n <\/p>\n\n \n \n <\/path>\n <\/svg>\n\n Read the project sheet<\/span>\n \n <\/a>\n <\/div>\n\n

\n \"Pre-clinical\n <\/div>\n\n \n <\/div>\n<\/div>\n\n\n\n\n
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\n \"Projet\n <\/div>\n
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\n Preclinical study for functional restoration in megalencephalic leukoencephalopathy with subcortical cysts (MLC) <\/h3>\n

\n The functional deficiency of the MLC1 protein leads to MLC. The project aims to evaluate the effect of gene therapy restoring MLC1 functionality in a mouse model. \n <\/p>\n\n \n \n \n <\/path>\n <\/svg>\n\n Read the project sheet<\/span>\n \n <\/a>\n \n <\/div>\n \n <\/div>\n<\/div>\n\n\n\n\n

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\n Clinical trial involving women with adrenoleukodystrophy (ALD) <\/h3>\n

\n This study will determine the proportion of women with ALD who have restless legs syndrome (RLS) and then evaluate the effects of pramipexole on the number of hours and quality of sleep in these women. \n <\/p>\n\n \n \n <\/path>\n <\/svg>\n\n Read the project sheet<\/span>\n \n <\/a>\n <\/div>\n\n

\n \"\"\n <\/div>\n\n \n <\/div>\n<\/div>\n\n\n\n\n
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\n \"Clinical\n <\/div>\n
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\n Clinical trial on Vanishing White Matter disease (VWM, CACH syndrome) <\/h3>\n

\n Analysis of the safety and efficacy of guanabenz in delaying or halting disease progression in children with early-onset VWM. \n <\/p>\n\n \n \n \n <\/path>\n <\/svg>\n\n Read the project sheet<\/span>\n \n <\/a>\n \n <\/div>\n \n <\/div>\n<\/div>\n\n\n\n\n\n

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\"Donation<\/p>\n\n <\/div>\n<\/div>\n\n\n\n\n\n

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\n CONTACT THE SPONSORSHIP DEPARTEMENT<\/a>\n<\/div>\n<\/div>\n\n\n\n
<\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":3089,"parent":8233,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-8256","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"\nSupport concrete projects - European Leukodystrophies Association<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ela-asso.com\/en\/mtbe\/support-concrete-projects\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Support concrete projects - European Leukodystrophies Association\" \/>\n<meta property=\"og:url\" content=\"https:\/\/ela-asso.com\/en\/mtbe\/support-concrete-projects\/\" \/>\n<meta property=\"og:site_name\" content=\"European Leukodystrophies Association\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ELAOfficielle\" \/>\n<meta property=\"article:modified_time\" content=\"2025-05-14T15:01:18+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@ELAOfficielle\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/ela-asso.com\/en\/mtbe\/support-concrete-projects\/\",\"url\":\"https:\/\/ela-asso.com\/en\/mtbe\/support-concrete-projects\/\",\"name\":\"Support concrete projects - 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