{"id":6776,"date":"2022-05-17T21:01:55","date_gmt":"2022-05-17T19:01:55","guid":{"rendered":"https:\/\/ela-asso.com\/lassociation-ela\/"},"modified":"2026-05-26T10:57:00","modified_gmt":"2026-05-26T08:57:00","slug":"lassociation-ela","status":"publish","type":"page","link":"https:\/\/ela-asso.com\/en\/","title":{"rendered":"ELA ASSOCIATION"},"content":{"rendered":"\n<section class=\"main-hero\">\n\n    <div class=\"main-hero-slider\">\n        \n\n        <div class=\"main-hero-slide\">\n            <div class=\"main-hero__image\">\n                <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2026\/03\/Header-PA-2025.jpg\" alt=\"\" \/>\n            <\/div>\n            <div class=\"container-small\">\n\n                <a href=\"https:\/\/ela-asso.com\/en\/wear-your-trainers-at-school\/the-ela-ambassador-award\/\">\n\n                \n                \n                <div class=\"main-hero__content\">\n                                        <h2>ELA Ambassador Award 2026: registrations are open!<\/h2>\n                <\/div>\n                <\/a>\n            <\/div>\n        <\/div>\n        \n\n        <div class=\"main-hero-slide\">\n            <div class=\"main-hero__image\">\n                <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2026\/02\/Header-depistage-neonatal-2.jpg\" alt=\"\" \/>\n            <\/div>\n            <div class=\"container-small\">\n\n                <a href=\"https:\/\/ela-asso.com\/en\/actualites\/leukodystrophies-newborn-screening-is-a-fundamental-right-for-children\/\">\n\n                \n                \n                <div class=\"main-hero__content\">\n                                        <div class=\"badge\">\n                        <div class=\"badge__icon\">\n                            <svg width=\"18\" height=\"16\" viewBox=\"0 0 18 16\" fill=\"#000\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\">\n    <path d=\"M9.99999 7.33L15 14H2.99999L7.99999 7.33V2H9.99999V7.33ZM12.96 0H5.03999C4.61999 0 4.38999 0.48 4.64999 0.81L5.99999 2.5V6.67L0.199992 14.4C-0.290008 15.06 0.179992 16 0.999992 16H17C17.82 16 18.29 15.06 17.8 14.4L12 6.67V2.5L13.35 0.81C13.61 0.48 13.38 0 12.96 0Z\"><\/path>\n<\/svg>                        <\/div>\n                        <div class=\"badge__text\">\n                            RESEARCH                        <\/div>\n                    <\/div>\n                                        <h2>Leukodystrophies: newborn screening is a fundamental right for children<\/h2>\n                <\/div>\n                <\/a>\n            <\/div>\n        <\/div>\n        \n\n        <div class=\"main-hero-slide\">\n            <div class=\"main-hero__image\">\n                <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2026\/02\/Header-MTBE-2026-sans-logo.jpg\" alt=\"\" \/>\n            <\/div>\n            <div class=\"container-small\">\n\n                <a href=\"https:\/\/ela-asso.com\/en\/mtbe\/\">\n\n                \n                \n                <div class=\"main-hero__content\">\n                                        <h2>\u201cWear your trainers at work\u201d<\/h2>\n                <\/div>\n                <\/a>\n            <\/div>\n        <\/div>\n        \n\n        <div class=\"main-hero-slide\">\n            <div class=\"main-hero__image\">\n                <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2024\/09\/Header-MTB-2024-course.jpg\" alt=\"\" \/>\n            <\/div>\n            <div class=\"container-small\">\n\n                <a href=\"https:\/\/ela-asso.com\/en\/wear-your-trainers-at-school\/\">\n\n                \n                \n                <div class=\"main-hero__content\">\n                                        <h2>Wear your trainers and beat disease!<\/h2>\n                <\/div>\n                <\/a>\n            <\/div>\n        <\/div>\n        \n\n        <div class=\"main-hero-slide\">\n            <div class=\"main-hero__image\">\n                <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2024\/10\/Header-Le-Coach-ELA.jpg\" alt=\"\" \/>\n            <\/div>\n            <div class=\"container-small\">\n\n                <a href=\"https:\/\/ela-asso.com\/en\/actualites\/le-coach-ela\/\">\n\n                \n                \n                <div class=\"main-hero__content\">\n                                        <div class=\"badge\">\n                        <div class=\"badge__icon\">\n                            <svg width=\"18\" height=\"20\" viewBox=\"0 0 18 20\" fill=\"#000\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\">\n    <path d=\"M16 2H15V0H13V2H5V0H3V2H2C0.89 2 0.00999999 2.9 0.00999999 4L0 18C0 19.1 0.89 20 2 20H16C17.1 20 18 19.1 18 18V4C18 2.9 17.1 2 16 2ZM16 18H2V8H16V18ZM16 6H2V4H16V6ZM9 11H14V16H9V11Z\"><\/path>\n<\/svg>                        <\/div>\n                        <div class=\"badge__text\">\n                            EVENT                        <\/div>\n                    <\/div>\n                                        <h2>Discover our mobilization anthem!<\/h2>\n                <\/div>\n                <\/a>\n            <\/div>\n        <\/div>\n        \n\n        <div class=\"main-hero-slide\">\n            <div class=\"main-hero__image\">\n                <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2022\/09\/entete_maladie_alexander.png\" alt=\"\" \/>\n            <\/div>\n            <div class=\"container-small\">\n\n                <a href=\"https:\/\/ela-asso.com\/en\/lassociation-ela\/ela-and-research\/research-news\/\">\n\n                \n                \n                <div class=\"main-hero__content\">\n                                        <h2>Research News<\/h2>\n                <\/div>\n                <\/a>\n            <\/div>\n        <\/div>\n            <\/div>\n<\/section>\n\n\n\n\n\n\n    \n    <section class=\"featured-article\">\n        <div class=\"container-small\">\n            <article>\n                <div class=\"featured-article__image\">\n                    \n                        <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2025\/09\/Miniature-grande-Mailing-Automne-2025.jpg\" alt=\"\" \/>\n\n                    \n                <\/div>\n                <div class=\"featured-article__content\">\n                                                                <div class=\"badge badge-inverse\">\n                            <div class=\"badge__icon\">\n                                <svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"20\" height=\"20\" viewBox=\"0 0 20 20\">\n  <path d=\"M205.1,14.463h16v12H206.27l-1.17,1.17Zm0-2a2,2,0,0,0-1.99,2l-.01,18,4-4h14a2.006,2.006,0,0,0,2-2v-12a2.006,2.006,0,0,0-2-2Zm2,10h12v2h-12Zm0-3h12v2h-12Zm0-3h12v2h-12Z\" transform=\"translate(-203.1 -12.463)\" fill=\"currentColor\"\/>\n<\/svg>\n                            <\/div>\n                            <div class=\"badge__text\">\n                                TESTIMONY                            <\/div>\n                        <\/div>\n                                        <h2>The disease has taken everything from them, let\u2019s not abandon them!<\/h2>\n                    <p>\n                                            <\/p>\n                    <a href=\"https:\/\/ela-asso.com\/en\/actualites\/the-disease-has-taken-everything-from-them-lets-not-abandon-them\/\" class=\"btn-inverse\">\n                        \n                        <svg width=\"17\" height=\"14\" viewBox=\"0 0 17 14\" fill=\"none\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\">\n                            <path d=\"M0 7H15M15 7L9.78261 1M15 7L9.78261 13\" stroke=\"#DF156E\" stroke-width=\"2\"\/>\n                        <\/svg>\n                            \n                        <span>Read more<\/span>\n                    <\/a>\n                <\/div>\n            <\/article>\n        <\/div>\n    <\/section>\n\n\n\n\n\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<hr class=\"wp-block-separator has-text-color has-alpha-channel-opacity has-background\" style=\"background-color:#cad5db;color:#cad5db\"\/>\n\n\n\n\n<div class=\"block-wrapper\">\n    <div class=\"container-content\">\n        <h3 style=\"text-align: center;\">ELA key figures<\/h3>\n\n            <\/div>\n<\/div>\n\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n\n<div class=\"block-wrapper\">\n    <div class=\"container-content\">\n        <h3 style=\"text-align: center;\"><span style=\"color: #df156e;\">30+<\/span><\/h3>\n<p style=\"text-align: center;\">years of commitment<span style=\"color: #df156e;\"><br \/>\n<\/span><\/p>\n\n            <\/div>\n<\/div>\n\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n\n<div class=\"block-wrapper\">\n    <div class=\"container-content\">\n        <h3 style=\"text-align: center;\"><span style=\"color: #df156e;\">601<\/span><\/h3>\n<p style=\"text-align: center;\">research programs supported since 1992<span style=\"color: #df156e;\"><br \/>\n<\/span><\/p>\n\n            <\/div>\n<\/div>\n\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n\n<div class=\"block-wrapper\">\n    <div class=\"container-content\">\n        <h3 style=\"text-align: center;\"><span style=\"color: #df156e;\">51.9 M\u20ac<\/span><\/h3>\n<p style=\"text-align: center;\">invested in research since 1992<span style=\"color: #df156e;\"><br \/>\n<\/span><\/p>\n\n            <\/div>\n<\/div>\n\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n\n<div class=\"block-wrapper\">\n    <div class=\"container-content\">\n        <h3 style=\"text-align: center;\"><span style=\"color: #df156e;\">17.9 M\u20ac<\/span><\/h3>\n<p style=\"text-align: center;\">devoted to supporting families since 1992<span style=\"color: #df156e;\"><br \/>\n<\/span><\/p>\n\n            <\/div>\n<\/div>\n\n<\/div>\n<\/div>\n\n\n\n\n<div class=\"single-button\">\n<div class=\"container-small\">\n    <a href=\"https:\/\/ela-asso.com\/en\/lassociation-ela\/activity-report-and-annual-accounts\/\" target=\"\" class=\"btn-primary \" data-label=\"\">2025 figures<\/a>\n<\/div>\n<\/div>\n\n\n\n<hr class=\"wp-block-separator has-text-color has-alpha-channel-opacity has-background\" style=\"background-color:#cad5db;color:#cad5db\"\/>\n\n\n\n\n\n\n<section class=\"our-work text-center push-top\">\n    <div class=\"container-small\">\n        <div class=\"our-work__content\">\n            <h2 class=\"heading heading-styled\">\n                Our missions            <\/h2>\n\n                        <p class=\"section-intro\">\n                Thanks to your donations, we can unite against leukodystrophies<br \/>\r\nwith clear objectives:            <\/p>\n            \n            <div class=\"items\">\n                                <div class=\"item\">\n                    <div class=\"icon\">\n                        <svg width=\"210\" height=\"146\" fill=\"none\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><g clip-path=\"url(#a)\" fill=\"#DF156E\" opacity=\".5\"><path d=\"M53.17 85.39c-30.2 0-30.2-36.28-30.2-48.2C22.97 20.55 36.52 7 53.17 7s30.2 13.55 30.2 30.2c0 23.3-7.93 48.2-30.2 48.2v-.01Zm0-74.39c-14.45 0-26.2 11.75-26.2 26.2 0 29.74 8.57 44.2 26.2 44.2 9.66 0 16.83-5.39 21.3-16.03 4.42-10.53 4.9-23.2 4.9-28.16 0-14.45-11.75-26.2-26.2-26.2V11ZM74.42 145.19H2c-1.1 0-2-.89-2-1.99v-.97c0-29.04 23.63-52.67 52.67-52.67 21.62 0 40.8 12.96 48.87 33.03a1.99 1.99 0 0 1-1.41 2.69c-10.1 2.28-18.17 8.64-23.97 18.9-.35.63-1.02 1.02-1.74 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23.63 44.59 52.67v.98c-.01 1.1-.9 1.99-2 1.99l-.01.01Zm-54.99-4h52.98c-.46-26.36-18.49-47.64-40.58-47.64-15.98 0-30.26 11.06-36.88 28.37 10.57 2.81 18.79 9.28 24.48 19.27Z\"><\/path><path d=\"M145.7 145.19H74.42c-.71 0-1.37-.38-1.73-.99-.36-.62-.36-1.37-.01-1.99 8.23-14.54 20.53-21.92 36.57-21.92 17.51 0 30.36 7.39 38.21 21.95.33.62.32 1.37-.04 1.97-.36.6-1.01.97-1.72.97v.01Zm-67.71-4h64.22c-7.2-11.22-18.27-16.9-32.96-16.9-13.35 0-23.85 5.68-31.26 16.9Z\"><\/path><\/g><g opacity=\".2\"><path d=\"M59.17 6c14.45 0 26.2 11.75 26.2 26.2 0 4.96-.48 17.64-4.9 28.16C76 71 68.83 76.39 59.17 76.39c-17.63 0-26.2-14.46-26.2-44.2 0-14.45 11.75-26.2 26.2-26.2V6ZM165.37 14.99c12.57 0 22.79 10.22 22.79 22.79 0 4.35-.42 15.45-4.29 24.67-3.89 9.25-10.11 13.95-18.5 13.95-15.34 0-22.79-12.63-22.79-38.61 0-12.57 10.22-22.79 22.79-22.79v-.01ZM115.25 56.04c11.49 0 20.84 8.56 20.84 19.07 0 3.67-.38 13.04-3.92 20.8-3.54 7.78-9.24 11.73-16.93 11.73-18.68 0-20.84-18.56-20.84-32.52 0-10.52 9.35-19.07 20.84-19.07l.01-.01ZM58.68 88.55c19.21 0 36.33 11.08 44.26 28.41-6.11 1.76-11.48 4.92-16.1 9.46l-.25.25c-.7.7-1.38 1.44-2.05 2.2-.17.19-.34.38-.51.58-.27.32-.53.65-.79.97-.3.37-.59.75-.88 1.14-.2.27-.41.54-.61.82-.48.67-.96 1.36-1.42 2.08-.09.14-.17.28-.26.42-.27.43-.54.86-.8 1.3H10.01c.55-26.36 22.17-47.64 48.66-47.64l.01.01Zm64.02 47.64H84c.07-.1.13-.2.2-.3.28-.41.56-.81.84-1.21.17-.23.33-.47.51-.7.33-.44.66-.85 1-1.27l.72-.87c.35-.41.7-.82 1.07-1.21.25-.27.5-.52.75-.77s.49-.51.75-.75c.27-.26.55-.52.83-.78.24-.22.48-.43.72-.64.29-.25.59-.5.89-.74.24-.19.48-.37.72-.56.31-.24.63-.48.94-.7.23-.16.47-.32.7-.48 1.18-.8 2.41-1.51 3.68-2.15.25-.13.51-.26.76-.38.35-.17.71-.32 1.07-.47.27-.12.54-.23.82-.34a35.715 35.715 0 0 1 1.92-.69c.39-.13.78-.25 1.18-.37.24-.07.48-.13.71-.19.45-.12.89-.24 1.35-.34 2.88-.65 5.92-.99 9.13-.99 3.62 0 7.01.35 10.19 1.04.19.04.38.09.57.13.57.13 1.14.27 1.7.43l.51.15c.64.19 1.26.39 1.88.6.07.02.13.04.2.07 1.43.51 2.8 1.1 4.12 1.77.1.05.19.1.29.15.58.3 1.15.62 1.71.95.07.04.15.09.22.13 1.23.75 2.41 1.57 3.54 2.47.14.11.27.22.4.33.43.35.85.72 1.26 1.09.13.12.26.23.39.36.52.48 1.03.98 1.52 1.5.03.04.07.07.1.11.45.48.89.98 1.32 1.49.14.17.28.34.42.52.33.41.66.83.98 1.26.13.18.27.35.4.53.43.6.85 1.2 1.26 1.84h-25.51l-.03-.02Zm30.18 0c-.24-.42-.49-.83-.74-1.24-.09-.15-.18-.31-.28-.46-.45-.72-.92-1.43-1.4-2.11-.18-.25-.36-.5-.54-.74-.32-.43-.64-.86-.98-1.28-.23-.29-.45-.57-.68-.85-.35-.42-.72-.83-1.08-1.23-.43-.47-.87-.93-1.32-1.38-.21-.21-.42-.43-.64-.63-.37-.36-.75-.71-1.14-1.05-.13-.11-.26-.22-.39-.34a37.173 37.173 0 0 0-4.32-3.21l-.17-.11c-1.6-1-3.28-1.89-5.04-2.65-.03-.01-.07-.03-.1-.04a40.32 40.32 0 0 0-5.58-1.93c-.02 0-.05-.01-.07-.02 6.62-17.31 20.9-28.37 36.88-28.37 22.09 0 40.12 21.28 40.58 47.64H152.88Z\" fill=\"#DF156E\"><\/path><path d=\"M42.67 46.41a5.09 5.09 0 1 0 0-10.18 5.09 5.09 0 0 0 0 10.18ZM63.67 46.41a5.09 5.09 0 1 0 0-10.18 5.09 5.09 0 0 0 0 10.18ZM43.63 56.31c1.3 4.02 5.08 6.93 9.53 6.93 4.45 0 8.23-2.91 9.53-6.93H43.62h.01ZM149.93 51.1a4.57 4.57 0 1 0 0-9.14 4.57 4.57 0 0 0 0 9.14ZM168.81 51.1a4.57 4.57 0 1 0 0-9.14 4.57 4.57 0 0 0 0 9.14ZM150.8 60.01a9 9 0 0 0 8.57 6.23c4.01 0 7.4-2.62 8.57-6.23H150.8ZM100.9 87.11a3.95 3.95 0 1 0 0-7.9 3.95 3.95 0 0 0 0 7.9ZM117.22 87.11a3.95 3.95 0 1 0 0-7.9 3.95 3.95 0 0 0 0 7.9ZM101.65 94.8a7.78 7.78 0 0 0 7.41 5.39c3.47 0 6.39-2.26 7.41-5.39h-14.82Z\" fill=\"#fff\"><\/path><\/g><defs><clipPath id=\"a\"><path fill=\"#fff\" transform=\"translate(0 7)\" d=\"M0 0h203.87v138.19H0z\"><\/path><\/clipPath><\/defs><\/svg>                    <\/div>\n                    <h3>\n                        Helping<br \/>\r\nand supporting<br \/>\r\nfamilies                    <\/h3>\n                <\/div>\n                                <div class=\"item\">\n                    <div class=\"icon\">\n                        \n\t\t<svg width=\"125\" height=\"154\" fill=\"none\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><g opacity=\".5\" 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<h3>250,000 pupils took part in the 22nd ELA Dictation<\/h3>\n                            <\/div>\n\n                            <div class=\"article__hover\">\n                                <a href=\"https:\/\/ela-asso.com\/en\/actualites\/ela-dictation-2025\/\" class=\"btn-primary\">Read<\/a>\n                            <\/div>\n                        <\/article>\n\n                    \n                    \n                                        \n                        <article>\n                                                        <div class=\"badge\">\n                                <div class=\"badge__icon\">\n                                    <svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"20\" height=\"20\" viewBox=\"0 0 20 20\">\n  <path d=\"M205.1,14.463h16v12H206.27l-1.17,1.17Zm0-2a2,2,0,0,0-1.99,2l-.01,18,4-4h14a2.006,2.006,0,0,0,2-2v-12a2.006,2.006,0,0,0-2-2Zm2,10h12v2h-12Zm0-3h12v2h-12Zm0-3h12v2h-12Z\" transform=\"translate(-203.1 -12.463)\" 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