{"id":7519,"date":"2022-02-23T10:00:15","date_gmt":"2022-02-23T09:00:15","guid":{"rendered":"https:\/\/ela-asso.com\/?post_type=news&#038;p=7519"},"modified":"2024-08-02T09:26:04","modified_gmt":"2024-08-02T07:26:04","slug":"the-only-innovative-treatment-for-cald-will-not-be-available-in-europe-the-incomprehension-of-ela-international","status":"publish","type":"news","link":"https:\/\/ela-asso.com\/en\/actualites\/the-only-innovative-treatment-for-cald-will-not-be-available-in-europe-the-incomprehension-of-ela-international\/","title":{"rendered":"The only innovative treatment for CALD will not be available in Europe : the incomprehension of ELA International!"},"content":{"rendered":"\n\n<div class=\"block-wrapper\">\n    <div class=\"container-content\">\n        <p>Authorised by the European Medicines Agency in 2021, Skysona, the first innovative treatment for cerebral adrenoleukodystrophy (CALD), will not be marketed in Europe. The Bluebird Bio laboratory that was to produce it is closing its doors in Europe, condemning our children. Why?<\/p>\n\n            <\/div>\n<\/div>\n\n\n\n\n\n<div class=\"container-content\">\n    <div class=\"downloads\">\n        <h3>Download document :<\/h3>\n        <ul>\n                                        \n            <li>\n                <a href=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2022\/02\/UK-Lutte-contre-les-Leucodystrophies-lincomprehension-dELA-International.pdf\" target=\"_blank\">\n                    <div class=\"download-metas\">\n                        <svg width=\"16\" height=\"20\" viewBox=\"0 0 16 20\" fill=\"none\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\">\n                            <path d=\"M4 14H12V16H4V14ZM4 10H12V12H4V10ZM10 0H2C0.9 0 0 0.9 0 2V18C0 19.1 0.89 20 1.99 20H14C15.1 20 16 19.1 16 18V6L10 0ZM14 18H2V2H9V7H14V18Z\" fill=\"#005973\"\/>\n                        <\/svg>\n                        <span>\n                            UK-Lutte-contre-les-Leucodystrophies-lincomprehension-dELA-International                        <\/span>  \n                    <\/div>\n                    <div class=\"download-actions\">\n                        \n                        <span>PDF &#8211; 193.94 KB<\/span>\n                        <svg width=\"16\" height=\"16\" viewBox=\"0 0 16 16\" fill=\"none\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\">\n                            <path d=\"M14 11V14H2V11H0V14C0 15.1 0.9 16 2 16H14C15.1 16 16 15.1 16 14V11H14ZM13 7L11.59 5.59L9 8.17V0H7V8.17L4.41 5.59L3 7L8 12L13 7Z\" fill=\"#DF156E\"\/>\n                        <\/svg>\n                            \n                    <\/div>\n                <\/a>\n            <\/li>\n                                <\/ul>\n    <\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":3521,"parent":0,"template":"","news_categories":[116],"class_list":["post-7519","news","type-news","status-publish","has-post-thumbnail","hentry","news_categories-research"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.0 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>The only innovative treatment for CALD will not be available in Europe : the incomprehension of ELA International! 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