{"id":31349,"date":"2026-04-03T11:24:36","date_gmt":"2026-04-03T09:24:36","guid":{"rendered":"https:\/\/ela-asso.com\/?post_type=news&p=31349"},"modified":"2026-07-01T12:12:00","modified_gmt":"2026-07-01T10:12:00","slug":"ela-infos-133","status":"publish","type":"news","link":"https:\/\/ela-asso.com\/en\/actualites\/ela-infos-133\/","title":{"rendered":"ELA infos 133"},"content":{"rendered":"\n
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\n\n \n
\n \"\"\n <\/div>\n
\n

\n The latest issue has arrived! <\/h3>\n

\n Discover this quarter’s magazine: articles on research progress, support for families, key events, news from our patrons, partners taking action, the commitment of families and ELA branches around the world, and practical information on how to get involved and support our cause…
\r\n
\r\nHeadlines: Leukodystrophies: newborn screening is a fundamental right for children.
\r\n\u2022 Leuconnect : results of the SMART-ALD study
\r\n\u2022 Disability: what\u2019s changing in 2026
\r\n\u2022 A spring of sport and solidarity with ELA
\r\n\u2022 Companies, how far will you take solidarity? \n <\/p>\n\n \n \n \n <\/path>\n <\/svg>\n\n Read the ELA infos 133 magazine (French)<\/span>\n \n <\/a>\n \n <\/div>\n \n <\/div>\n<\/div>\n\n\n\n\n

<\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":5370,"parent":0,"template":"","news_categories":[223],"class_list":["post-31349","news","type-news","status-publish","has-post-thumbnail","hentry","news_categories-ela-infos-en"],"acf":[],"yoast_head":"\nELA infos 133 - European Leukodystrophies Association<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ela-asso.com\/en\/actualites\/ela-infos-133\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ELA infos 133 - European Leukodystrophies Association\" \/>\n<meta property=\"og:url\" content=\"https:\/\/ela-asso.com\/en\/actualites\/ela-infos-133\/\" \/>\n<meta property=\"og:site_name\" content=\"European Leukodystrophies Association\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ELAOfficielle\" \/>\n<meta property=\"article:modified_time\" content=\"2026-07-01T10:12:00+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@ELAOfficielle\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/ela-asso.com\/en\/actualites\/ela-infos-133\/\",\"url\":\"https:\/\/ela-asso.com\/en\/actualites\/ela-infos-133\/\",\"name\":\"ELA infos 133 - 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