{"id":11812,"date":"2023-06-09T15:25:45","date_gmt":"2023-06-09T13:25:45","guid":{"rendered":"https:\/\/ela-asso.com\/?post_type=news&#038;p=11812"},"modified":"2023-06-12T08:46:49","modified_gmt":"2023-06-12T06:46:49","slug":"ela-2023-ambassador-award-on-the-way-to-the-ela-2024-team","status":"publish","type":"news","link":"https:\/\/ela-asso.com\/en\/actualites\/ela-2023-ambassador-award-on-the-way-to-the-ela-2024-team\/","title":{"rendered":"ELA 2023 Ambassador Award: on the way to the ELA 2024 team!"},"content":{"rendered":"\n\n<div class=\"block-wrapper\">\n    <div class=\"container-content\">\n        <p><strong>On June 7, student ambassadors, families and many ELA supporters gathered at the Cit\u00e9 des Sciences et de l&#8217;Industrie in Paris for the 18th ELA Ambassador Award ceremony.<\/strong><\/p>\n<h3>Ambassadors, athletes, artists: all committed to ELA!<\/h3>\n<p>Over 250 ambassadors from all over France and numerous personalities from the world of sport and entertainment attended the event. Among them were Olympic and Paralympic athletes, as well as loyal ELA supporters: Caroline Bourg, Fr\u00e9d\u00e9ric Bouraly, J\u00e9r\u00f4me Fernandez, Val\u00e9rie Gauvin, Pascal Gentil, Priscilla Gneto, Micha\u00ebl Gregorio, Floria Gue\u00ef, B\u00e9atrice Hess, C\u00e9cilia Hornus, Muriel Hurtis, Marie-H\u00e9l\u00e8ne Lentini, Ma\u00eblle, Madeleine Malonga, Mentissa, Sandrine Martinet, Antoinette Nana Djimou, Charlie Nune, Florent Pagny, Pihpoh, Sandrine Qu\u00e9tier, Thierry Ragueneau, Arnaud Sadowski, Sophie Thalmann, Titoff, Gr\u00e2ce Zaadi and Zin\u00e9dine Zidane.<\/p>\n\n            <\/div>\n<\/div>\n\n\n\n\n<div class=\"container-content-small\">\n    <div class=\"galerie mt-4 mb-4\">\n\n        <div class=\"grid grid-3\">\n\n                        <div class=\"grid-item\">\n                <a href=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Equipe-ELA-2024.jpg\" class=\"galerie-item\" data-fancybox=\"gallery-117901180211787118041179211800117961179811794\" data-caption=\"\">\n\n                        <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Equipe-ELA-2024.jpg\" alt=\"\">\n\n                <\/a>\n            <\/div>\n                        <div class=\"grid-item\">\n                <a href=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Sophie-Thalmann-Crystelle-Cottart-Celine-et-Augustin-Guy-Alba-et-Sandrine-Quetier.jpg\" class=\"galerie-item\" data-fancybox=\"gallery-117901180211787118041179211800117961179811794\" data-caption=\"\">\n\n                        <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Sophie-Thalmann-Crystelle-Cottart-Celine-et-Augustin-Guy-Alba-et-Sandrine-Quetier.jpg\" alt=\"\">\n\n                <\/a>\n            <\/div>\n                        <div class=\"grid-item\">\n                <a href=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Celine-et-Augustin.jpg\" class=\"galerie-item\" data-fancybox=\"gallery-117901180211787118041179211800117961179811794\" data-caption=\"\">\n\n                        <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Celine-et-Augustin.jpg\" alt=\"\">\n\n                <\/a>\n            <\/div>\n                        <div class=\"grid-item\">\n                <a href=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Tony-Estanguet-Zinedine-Zidane-et-Florent-Pagny.jpg\" class=\"galerie-item\" data-fancybox=\"gallery-117901180211787118041179211800117961179811794\" data-caption=\"Avec Tony Estanguet et Zin\u00e9dine Zidane sur la sc\u00e8ne du Prix Ambassadeur 2023\">\n\n                        <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Tony-Estanguet-Zinedine-Zidane-et-Florent-Pagny.jpg\" alt=\"Avec Tony Estanguet et Zin\u00e9dine Zidane sur la sc\u00e8ne du Prix Ambassadeur 2023\">\n\n                <\/a>\n            <\/div>\n                        <div class=\"grid-item\">\n                <a href=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Faustine-Augustin-et-Aylin-interviewers-dun-jour-pour-ELA.jpg\" class=\"galerie-item\" data-fancybox=\"gallery-117901180211787118041179211800117961179811794\" data-caption=\"\">\n\n                        <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Faustine-Augustin-et-Aylin-interviewers-dun-jour-pour-ELA.jpg\" alt=\"\">\n\n                <\/a>\n            <\/div>\n                        <div class=\"grid-item\">\n                <a href=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_parrains-et-familles.jpg\" class=\"galerie-item\" data-fancybox=\"gallery-117901180211787118041179211800117961179811794\" data-caption=\"\">\n\n                        <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_parrains-et-familles.jpg\" alt=\"\">\n\n                <\/a>\n            <\/div>\n                        <div class=\"grid-item\">\n                <a href=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Maelle.jpg\" class=\"galerie-item\" data-fancybox=\"gallery-117901180211787118041179211800117961179811794\" data-caption=\"\">\n\n                        <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Maelle.jpg\" alt=\"\">\n\n                <\/a>\n            <\/div>\n                        <div class=\"grid-item\">\n                <a href=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Mentissa.jpg\" class=\"galerie-item\" data-fancybox=\"gallery-117901180211787118041179211800117961179811794\" data-caption=\"\">\n\n                        <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Mentissa.jpg\" alt=\"\">\n\n                <\/a>\n            <\/div>\n                        <div class=\"grid-item\">\n                <a href=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Groupe_banderolle.jpg\" class=\"galerie-item\" data-fancybox=\"gallery-117901180211787118041179211800117961179811794\" data-caption=\"\">\n\n                        <img decoding=\"async\" src=\"https:\/\/ela-asso.com\/wp-content\/uploads\/2023\/06\/Diapo_PA_Groupe_banderolle.jpg\" alt=\"\">\n\n                <\/a>\n            <\/div>\n            \n        <\/div>\n\n\n    <\/div>\n<\/div>\n\n\n\n\n\n<div class=\"block-wrapper\">\n    <div class=\"container-content\">\n        <h3>A unique ceremony<\/h3>\n<p>It opened in song with Mentissa and Ma\u00eblle, both former contestants on \u201cThe Voice\u201d.<\/p>\n<p>Sandrine Qu\u00e9tier, host and honorary member of ELA, acted as master of ceremonies, giving the floor to the speakers. Crystelle Cottart, President of ELA, thanked all the students, pointing out that this year, more than 3,300 schools had mobilized and 570,000 students had put on their sneakers for the children of ELA: &#8220;\u201cYou have shown us once again how much you can mobilize for this fight that ELA is waging\u201d.<\/p>\n<p>C\u00e9line, mother of Louis and Augustin, then shared her family history marked by metachromatic leukodystrophy, with the clinical trial Augustin underwent in Milan when he was barely a year old. Today, Augustin is \u201cdoing very well and living his life as a little boy\u201d. This good fortune was made possible by ELA&#8217;s unstinting support for medical research for over 30 years.<\/p>\n\n            <\/div>\n<\/div>\n\n\n\n\n\n\n\n\n<div class=\"videos\">\n    <div class=\"container-content-small\">\n        <div class=\"single-video-wrapper\">\n            <div class=\"video\">\n                <iframe loading=\"lazy\" title=\"Prix Ambassadeur ELA 2023\" width=\"640\" height=\"360\" src=\"https:\/\/www.youtube.com\/embed\/W4MmI_12dCE?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>            <\/div>\n            <div class=\"download\">\n                <span><\/span>\n                            <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n\n\n\n<div class=\"block-wrapper\">\n    <div class=\"container-content\">\n        <p>Sophie Thalmann, Miss France 1998 and honorary member of ELA, talked about her commitment to helping families for over 25 years. On May 25, she went to Lafitole to support Math\u00e9o and his family as part of the \u201cMets tes baskets et bats la maladie\u201d operation. Math\u00e9o should have benefited from an innovative gene therapy treatment, but the American laboratory producing the treatment abruptly withdrew from the European market a few days before the operation. To prevent this from happening again, his mom \u00c9lodie has launched a petition supported by ELA.<br \/>\n\u201cI&#8217;m counting on you to ask those around you, your loved ones, your parents, to [&#8230;] sign this petition to make the biggest noise!\u201d<br \/>\nHis appeal has been heard, for at the time of writing, the petition has exceeded 50,000 signatures on the change.org website.<\/p>\n<p>Guy Alba, founder of ELA and President of ELA International, recalled the existence of two treatments for metachromatic leukodystrophy and cerebral adrenoleukodystrophy. This success has been made possible by the constant mobilization of students since 1994.<br \/>\n\u201cYou have a share in this therapeutic success in your sneakers!\u201d<\/p>\n<h3><strong>Let\u2019s go for the ELA 2024 team!<\/strong><\/h3>\n<p>So for the next \u201cMets tes baskets\u201d campaign we need to do faster, higher, stronger, like the athletes who will be taking part in the PARIS 2024 Olympic and Paralympic Games.<br \/>\nFor the launch of this ELA 2024 team placed under the sign of the Olympic and Paralympic Games, we are lucky to be able to count on Tony Estanguet, President of the Olympic and Paralympic Games 2024, Florent Pagny and Zin\u00e9dine Zidane, both honorary members of ELA.<br \/>\nThey were interviewed by real little reporters Augustin, Aylin and Faustine, pupils at Coll\u00e8ge Darius Milhaud in Sartrouville (78), which has been awarded the \u201cG\u00e9n\u00e9ration 2024\u201d label.<br \/>\n\u201cParis 2024 is at ELA&#8217;s side to ensure the success of the Mets tes baskets operation,\u201d declared Tony Estanguet, announcing at the same time the G\u00e9n\u00e9ration 2024 label for the 2023-2024 campaign.<br \/>\nDuring the interview, Florent Pagny recounted his encounter with ELA in 1998, following a letter from Francine, mother of J\u00e9r\u00e9my, who suffers from leukodystrophy. It was a heart-rending appeal that got the ball rolling.<\/p>\n<p>It was Zin\u00e9dine Zidane, captain of the ELA 2024 team, who announced the objective: \u201cTo help the ELA team grow, we first have to set ourselves an ambitious goal. For the 2024 Olympic and Paralympic Games, I&#8217;m launching a new challenge: 1 million students in sneakers to walk together 1 billion steps for sick children!\u201d<br \/>\nHe invited all participants to take the first steps in the Parc de la Villette!<br \/>\nWith a team like this behind it, ELA can overcome any obstacle!<\/p>\n\n            <\/div>\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":11823,"parent":0,"template":"","news_categories":[114],"class_list":["post-11812","news","type-news","status-publish","has-post-thumbnail","hentry","news_categories-event"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.0 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ELA 2023 Ambassador Award: on the way to the ELA 2024 team! - European Leukodystrophies Association<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ela-asso.com\/en\/actualites\/ela-2023-ambassador-award-on-the-way-to-the-ela-2024-team\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ELA 2023 Ambassador Award: on the way to the ELA 2024 team! 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