{"id":10825,"date":"2024-04-16T15:12:49","date_gmt":"2024-04-16T13:12:49","guid":{"rendered":"https:\/\/ela-asso.com\/?post_type=news&p=10825"},"modified":"2024-04-17T09:32:39","modified_gmt":"2024-04-17T07:32:39","slug":"ela-2023-general-assembly-weekend","status":"publish","type":"news","link":"https:\/\/ela-asso.com\/en\/actualites\/ela-2023-general-assembly-weekend\/","title":{"rendered":"ELA 2024 General Assembly Weekend"},"content":{"rendered":"\n\n
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The 33rd General Meeting of the ELA association was held on 14 April at the H\u00f4tel Pullman Montparnasse – Paris. This annual event, which brought together 240 people, gave families and members of the association the opportunity to meet up and take stock of the year 2023.<\/strong><\/p>\n

A look back at this high point in the life of the association.<\/h3>\n

From Friday onwards, ELA families arrived from all over France for this weekend, during which the pleasure of reunions was mixed with studious exchanges and moments of celebration and sharing.<\/p>\n

Everyone was able to make the most of the visits and activities on offer in the capital, the facilities offered by the magnificent Pullman Montparnasse hotel, which was welcoming us for the first time, and of course the friends of ELA.<\/p>\n

Our psychologist Marie Claude Blondeau led discussion groups on the themes of family carers and bereavement.<\/p>\n

Saturday’s festive meal was attended by our patrons Aur\u00e9lie Barg\u00e8me, Maelig Charlery alias Humain Cool, J\u00e9r\u00e9my Charvet, Chiloo, Marie H\u00e9l\u00e8ne Lentini, Sandrine Qu\u00e9tier, El\u00e9onore Sarrazin, Claudia Tagbo and Fabian Wolfrom: an impromptu concert and guaranteed entertainment on the dancefloor to everyone’s delight.<\/p>\n

The AGM on Sunday morning was chaired by Crystelle Cottart, who introduced the plenary session by presenting her annual report. Director Nadia Cerise reported on the activities carried out in 2023 in support of the association’s families, medical research and awareness-raising campaigns.<\/p>\n

The annual accounts for 2023, certified by the auditor, and the projected budget for 2024 were presented by treasurer Pascal Noirot.<\/p>\n

All the resolutions were adopted unanimously.
\nAt the close of the General Meeting, the outgoing third of the Board of Directors was renewed by secret ballot. Jorge Bernardino, Crystelle Cottart, Ga\u00ebl De Miomandre and Pascal Noirot were re-elected as directors. A new member, Ga\u00eblle Gomes Ramalho, joins the Board.<\/p>\n

 <\/p>\n\n \n\n \n \n\n \n <\/path>\n <\/svg>\n\n Activity and financial reports 2023<\/span>\n \n <\/a>\n\n\n \n\n \n \n\n \n <\/path>\n <\/svg>\n\n Statutory auditor’s report on the 2023 financial statements<\/span>\n \n <\/a>\n\n\n \n\n \n \n\n \n <\/path>\n <\/svg>\n\n Full composition of the ELA Board of Directors<\/span>\n \n <\/a>\n\n\n <\/div>\n<\/div>\n\n\n\n\n

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\n \n\n \"Show\n\n <\/a>\n <\/div>\n
\n \n\n \"33rd\n\n <\/a>\n <\/div>\n
\n \n\n \"Meal\n\n <\/a>\n <\/div>\n
\n \n\n \"Sandrine\n\n <\/a>\n <\/div>\n
\n \n\n \"Humain\n\n <\/a>\n <\/div>\n
\n \n\n \"Chiloo\n\n <\/a>\n <\/div>\n
\n \n\n \"The\n\n <\/a>\n <\/div>\n
\n \n\n \"33rd\n\n <\/a>\n <\/div>\n
\n \n\n \"Announcement\n\n <\/a>\n <\/div>\n
\n \n\n \"\"\n\n <\/a>\n <\/div>\n
\n \n\n \"\"\n\n <\/a>\n <\/div>\n \n <\/div>\n\n\n <\/div>\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":17865,"parent":0,"template":"","news_categories":[114],"class_list":["post-10825","news","type-news","status-publish","has-post-thumbnail","hentry","news_categories-event"],"acf":[],"yoast_head":"\nELA 2024 General Assembly Weekend - European Leukodystrophies Association<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ela-asso.com\/en\/actualites\/ela-2023-general-assembly-weekend\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ELA 2024 General Assembly Weekend - European Leukodystrophies Association\" \/>\n<meta property=\"og:url\" content=\"https:\/\/ela-asso.com\/en\/actualites\/ela-2023-general-assembly-weekend\/\" \/>\n<meta property=\"og:site_name\" content=\"European Leukodystrophies Association\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ELAOfficielle\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-17T07:32:39+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@ELAOfficielle\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/ela-asso.com\/en\/actualites\/ela-2023-general-assembly-weekend\/\",\"url\":\"https:\/\/ela-asso.com\/en\/actualites\/ela-2023-general-assembly-weekend\/\",\"name\":\"ELA 2024 General Assembly Weekend - 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