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ELA’s 20th anniversary

A new study is available on Leuconnect!Study on the quality of life of women affected by X-linked adrenoleukodystrophy [ALD] In partnership with ELA International and under the responsibility of Professor Wolfgang Koehler in Germany, the team from the University of Leipzig is opening a study on the quality of life of women affected by the mutation of the ABCD1 gene, responsible […]
Read more about ELA Infos
ELA InfosELA Infos is a printed French-language review which has been published since 1993. It is available by subscription for 16 euros (just over £14). The review is also disseminated to health professionals and institutions. It provides an update every three months on ELA's activities.
Read more about ELA Infos

Leukodystrophies

ELA International

Research news

What are leukodystrophies?

Myelin

Types of leukodystrophy

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The ELA Foundation

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Medical Research

A new study is available on Leuconnect!Study on the quality of life of women affected by X-linked adrenoleukodystrophy [ALD] In partnership with ELA International and under the responsibility of Professor Wolfgang Koehler in Germany, the team from the University of Leipzig is opening a study on the quality of life of women affected by the mutation of the ABCD1 gene, responsible […]
Read more about ELA Infos
ELA InfosELA Infos is a printed French-language review which has been published since 1993. It is available by subscription for 16 euros (just over £14). The review is also disseminated to health professionals and institutions. It provides an update every three months on ELA's activities.
Read more about ELA Infos

Families

Personal stories

You and the disease

A new study is available on Leuconnect!Study on the quality of life of women affected by X-linked adrenoleukodystrophy [ALD] In partnership with ELA International and under the responsibility of Professor Wolfgang Koehler in Germany, the team from the University of Leipzig is opening a study on the quality of life of women affected by the mutation of the ABCD1 gene, responsible […]
Read more about ELA Infos
ELA InfosELA Infos is a printed French-language review which has been published since 1993. It is available by subscription for 16 euros (just over £14). The review is also disseminated to health professionals and institutions. It provides an update every three months on ELA's activities.
Read more about ELA Infos

Events

Event news

Wear your trainers and beat disease in school

A new study is available on Leuconnect!Study on the quality of life of women affected by X-linked adrenoleukodystrophy [ALD] In partnership with ELA International and under the responsibility of Professor Wolfgang Koehler in Germany, the team from the University of Leipzig is opening a study on the quality of life of women affected by the mutation of the ABCD1 gene, responsible […]
Read more about ELA Infos
ELA InfosELA Infos is a printed French-language review which has been published since 1993. It is available by subscription for 16 euros (just over £14). The review is also disseminated to health professionals and institutions. It provides an update every three months on ELA's activities.
Read more about ELA Infos

Ambassadors

Honors ambassadors

A new study is available on Leuconnect!Study on the quality of life of women affected by X-linked adrenoleukodystrophy [ALD] In partnership with ELA International and under the responsibility of Professor Wolfgang Koehler in Germany, the team from the University of Leipzig is opening a study on the quality of life of women affected by the mutation of the ABCD1 gene, responsible […]
Read more about ELA Infos
ELA InfosELA Infos is a printed French-language review which has been published since 1993. It is available by subscription for 16 euros (just over £14). The review is also disseminated to health professionals and institutions. It provides an update every three months on ELA's activities.
Read more about ELA Infos

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A new study is available on Leuconnect!Study on the quality of life of women affected by X-linked adrenoleukodystrophy [ALD] In partnership with ELA International and under the responsibility of Professor Wolfgang Koehler in Germany, the team from the University of Leipzig is opening a study on the quality of life of women affected by the mutation of the ABCD1 gene, responsible […]
Read more about ELA Infos
ELA InfosELA Infos is a printed French-language review which has been published since 1993. It is available by subscription for 16 euros (just over £14). The review is also disseminated to health professionals and institutions. It provides an update every three months on ELA's activities.
Read more about ELA Infos

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ELA Infos

ELA Infos is a printed French-language review which has been published since 1993. It is available by subscription for 16 euros (just over £14). The review is also disseminated to health professionals and institutions. It provides an update every three months on ELA’s activities.

Its role is to:

Provide an account of the Association’s actions in pursuit of its social aims,

Disseminate information about medical advances and medical and social developments,

Be a link between families affected by leukodystrophy or a myelin disease

The latest edition of ELA Infos in french can be consulted on line and the archives are also available for consultation.

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Summary of the latest issue

ELA n°85 – March 2014

Headline
Marion Bartoli is joining ELA’s family

Shoes on to beat the disease at school
2014 Best Ambassador Awards

Shoes on to beat the disease at work
Open letter from François-Henri Pinault, CEO of Kering

Medicine
Issues regarding leukodystrophies research

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ELA Infos is the quarterly journal of ELA published since 1993. Every three months, it reviews the news related to ELA’s missions.

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General information

title :

Mme

Mr

Melle

lastname : *

firstname

addresse : *

addresse (rest) : *

zip : *

Adresse :

city : *

country :

email : *

cell phone :

phone

Personnal information

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Patient

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Membre de la famille ou sympathisant, précisez éventuel :

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Introduction
ELA's missions
Organisational Chart
ELA in France
Permanent Staff
ELA Board
Local ELA delegates and representatives
ELA in Europe
Contacts
Publications
ELA Infos
ELA's 20th anniversary

Last scientific info

New gene therapy trial for adrenoleukodystrophy
In 2009 the results of the gene therapy trial for childhood cerebral adrenoleukodystrophy (ALD) performed in Paris by Pr. Patrick Aubourg and Dr. Nathalie Cartier ...
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