Study on the quality of life of women affected by X-linked adrenoleukodystrophy [ALD] In partnership with ELA International and under the responsibility of Professor Wolfgang Koehler in Germany, the team from the University of Leipzig is opening a study on the quality of life of women affected by the mutation of the ABCD1 gene, responsible […]

Each year, the ELA association organizes a meeting for patients and their families. International scientists will attend the meeting where they will present the latest scientific and medical breakthroughs and answer the questions of patients and families. This annual event is a unique opportunity for the patients and their families to gain knowledge and interact […]

We are pleased to announce the organization of the 3rd ELA Scientific Congress entitled “Advances in molecular pathogenesis, diagnosis and management of the leukodystrophies” from June 24 to 26, 2015 in Paris, France. Outstanding speakers with expertise in leukodystrophies, myelin biology, neuroimaging, stem cell research and gene therapy will participate to the congress to share […]