Written on Tuesday 27 January 2015
The ELA Foundation will fund 13 research projets regarding leukodystrophies in 2014 for a budget of 977 626 Euros:
In addition, ELA also funded this year:
Written on Thursday 22 January 2015
Each year, the ELA association organizes a meeting for patients and their families. International scientists will attend the meeting where they will present the latest scientific and medical breakthroughs and answer the questions of patients and families. This annual event is a unique opportunity for the patients and their families to gain knowledge and interact […]
Written on Thursday 18 December 2014
We are pleased to announce the organization of the 3rd ELA Scientific Congress entitled “Advances in molecular pathogenesis, diagnosis and management of the leukodystrophies” from June 24 to 26, 2015 in Paris, France. Outstanding speakers with expertise in leukodystrophies, myelin biology, neuroimaging, stem cell research and gene therapy will participate to the congress to share […]
Written on Monday 24 November 2014
We are happy to announce the launch in France and Spain of the clinical trial testing the MD1003 drug developed by MedDay Pharmaceuticals in patients with adrenomyeloneuropathy (AMN). Authorizations for the investigational center in Germany are awaited. The trial, funded by ELA for 800.000 euros, will gather 60 AMN men with no cerebral involvement. Below […]
