Register to the 2015 ELA Families / Scientists Meeting

Written on Thursday 22 January 2015

Each year, the ELA association organizes a meeting for patients and their families. International scientists will attend the meeting where they will present the latest scientific and medical breakthroughs and answer the questions of patients and families. This annual event is a unique opportunity for the patients and their families to gain knowledge and interact with international experts specialised in leukodystrophies and myelin diseases.

The 2015 meeting will take place on March 28  & 29, 2015 in Paris, France.


Tentative program (to be confirmed)

Saturday March 28

General Assembly of the Association

Diseases’ workshops*

  • Workshop on ALD/AMN
  • Workshop on Refsum disease
  • Workshop on MLD
  • Workshop on Krabbe disease
  • Workshop on CACH syndrome, Alexander disease, MLC and Canavan disease
  • Workshop on PMD and other hypomyelinating leukodystrophies
  • Workshop on undetermined leukodystrophies
  • Workshop on Aicardi-Goutières syndrome

Plenary session “Patients as research players


Sunday March 29

Counselling group

Forum : “Prevention, Care & Accompaniment”

*A translation service English/French, French/English will be available during the meeting.


Download :

Family non ELA-members wishing to attend the meeting must contact us prior to February 28, 2015 at the following phone number +33  3 83 30 48 31 or use the following link :

Contact the ELA association