Download the conference report of the 2014 ELA Families / Scientists meeting

Written on Wednesday 23 July 2014

The 2014 ELA Families/Scientists meeting gathered 360 participants in Paris, among them 27 international scientists with expertise in leukodystrophies and myelin diseases. During the 8 diseases’ workshops and the plenary session organized, scientists presented the results of their research work in lay language and answered questions from patients and their families.




Download our special report compiling the information presented during the scientific workshops



Diseases’ workshops

  • Workshop on ALD/AMN
  • Workshop on Refsum disease
  • Workshop on MLD
  • Workshop on Krabbe disease
  • Workshop on CACH/VWM syndrome, Alexander disease, MLC and Canavan disease
  • Workshop on PMD and other hypomyelinating leukodystrophies
  • Workshop on undetermined leukodystrophies
  • Workshop on Aicardi‐Goutières syndrome