Study on the quality of life of women affected by X-linked adrenoleukodystrophy [ALD] In partnership with ELA International and under the responsibility of Professor Wolfgang Koehler in Germany, the team from the University of Leipzig is opening a study on the quality of life of women affected by the mutation of the ABCD1 gene, responsible […]

The ELA Foundation will fund 13 research projets regarding leukodystrophies in 2014 for a budget of 977 626 Euros: 7 new projects for young investigators for 504 581 Euros, 6 renewed projects for a total of 473 045 Euros. In addition, ELA also funded this year: the biobank project for 200 000 Euros. the MD1003 […]

Each year, the ELA association organizes a meeting for patients and their families. International scientists will attend the meeting where they will present the latest scientific and medical breakthroughs and answer the questions of patients and families. This annual event is a unique opportunity for the patients and their families to gain knowledge and interact […]