Symposium ELA Families / Researchers

Symposium ELA Families / Researchers 2012

Each year, the ELA organizes a symposium for patients and their families. Many researchers from around the world to present the latest scientific and medical advances and answer questions from families. This annual event is a unique opportunity for patients and their families to interact with researchers and specialists leukodystrophies myelin diseases.

Download the report of the 2012 conference which was held in Paris on 31 March and 1 April 2012: ELA Conference 2012 – Report

Summary

Scientific Workshops
  • Workshop ALD / AMN
  • Refsum disease workshop
  • MLD workshop
  • Krabbe disease workshop
  • CACH syndrome workshop, Alexander disease, Canavan and MLC
  • Workshop PMD and other leukodystrophies hypomyélinisantes
  • Undetermined leukodystrophies workshop
  • Aicardi syndrome workshop-Goutières
scientific lexicon