Families meetings

2016 ELA Families / Scientists meeting

Each year, the ELA association organizes a meeting for patients and their families. Many researchers coming from all around the world will present the latest scientific and medical advances and answer the questions of patients and families. This annual event is an exceptional opportunity for patients and their families to interact with scientists specialised in leukodystrophies and myelin diseases and learn from their diseases.

The 2016 meeting will take place on April 2-3, 2016 in Paris (France).



Saturday April 2


General Assembly of the Association (10 AM – 1 PM)

Diseases workshops* (2:30 – 5:30 PM)

  • Workshop on Peroxysomal diseases
  • Workshop on Lysosomal diseases
  • Workshop on Hypomyelinating diseases
  • Workshop on Vacuolating diseases
  • Workshop on Aicardi-Goutières diseases
  • Workshop on LD undetermined (pending)


Sunday April 3

Counselling group (10:15 AM – 12:30 PM)

Forum: “Psychology” (10:30 AM – 12:30 PM)

Forum: “Prevention, Care & Accompaniment” (10:30 AM – 12:30 PM)

*A translation service English/French, French/English will be available during the meeting.


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