Inauguration of Indian Ocean ELA on Réunion Island


Written on Monday 12 May 2014

The inauguration of the new Olympique de Saint-Paul stadium on Réunion Island on Saturday May 26th 2012 was also the occasion for the launch of ELA’s Indian Ocean branch. A gala football match was organized between a Reunion Island selection and the France 98 All Star Team led by Zinédine Zidane, ELA’s emblematic patron. The […]

Read more

Hundreds of thousands of schoolchildren all over France took part in the traditional ELA Dictation this morning. Here’s a look back at a morning full of emotion for many people. The stories of the day with photos…


Written on Monday 12 May 2014

Before putting on their trainers (for the ELA event of the same name), this morning nearly 2000 schools worked on the 9th ELA Dictation which was written this year by the 2011 winner of France’s most prestigious literary prize, the “Prix Goncourt”. The dictation’s title was “Une paire de baskets pour deux” (‘A pair of […]

Read more

ELA at the gene therapy Meeting concerning rare diseases in Tokyo, the 16th and 17th of January


Written on Monday 12 May 2014

At the invitation of Prs. Eto Yoshikatsu and Toya Ohashi, co-directors of the Medical Research Center for Brain Diseases, of the celebrated Medical Faculty of Jikei University, Tokyo, Guy Alba and Pascal Prin presented the ELA organisation during the 4th Collaborative International Forum of human Gene Therapy for Genetic Diseases, in front of an audience of […]

Read more

Over 320 people at the ELA General Assembly and Families/Scientists meeting


Written on Wednesday 10 April 2013

Last weekend, the ELA General Assembly and Families/Scientists meeting attracted around 320 people to the Novotel Vaugirard hotel in Paris. During the weekend, scientists presented their work, discussed their research results and answered questions from patients’ families. As is the case every year, this high point in ELA’s calendar was rich in emotion and shared exchanges […]

Read more

Zinedine Zidane climbs the Mont-Blanc for ELA


Written on Friday 14 September 2012

Accompanied by Christian Jeanpierre, the sports journalist and football commentator for the French channel TF1, who is also an active ambassador for ELA, Zinedine Zidane climbed the Mont-Blanc in the French Alps for ELA and filmed a video on the summit. For Zinedine Zidane, this challenge was intended to symbolically convey his commitment to fighting […]

Read more

18th edition of the Evian Masters, again under the sign of solidarity with a beautiful highlighted ELA


Written on Friday 17 August 2012

  It is now traditional: every year for 10 years now, the Evian Masters honors ELA. Again this year, while the best players in the world compete on the course of the Golf Evian, the Village hosts a booth where the colors of fluff ELA, caps, golf balls and other TShirts are sold in aid […]

Read more

Real Madrid and ELA together for children with leukodystrophies


Written on Tuesday 12 April 2011

Saturday October 17th 2009, 8pm at the Santiago Bernabéu Stadium in Madrid Having launched ELA Spain in 2005 with Raul Gonzales Blanco, his friend from Real Madrid and fellow ELA ambassador, , Zinédine Zidane has now got Europe’s most prestigious club involved in supporting the European Leukodystrophy Association (ELA). The Real Madrid-Valladolid game on October […]

Read more

The French World Cup team helps to fight against leukodystrophies


Written on Monday 12 April 2010

The French Football Federation (FFF) and the French World Cup squad and coaching staff have chosen to support ELA, announcing this officially at the team’s last friendly game in France before the World Cup. Three sheets of commemorative stamps featuring pictures of the French players will go on sale very shortly. The “Bleus” turned this […]

Read more

Zinédine Zidane celebrates Europe with ELA: the match of solidarity


Written on Monday 12 April 2010

On May the 8th 2010, the Josy-Barthel stadium in Luxembourg welcomed the emblematic ELA ambassador Zinédine Zidane for a international match to celebrate the 60th anniversary of the declaration by the then French Foreign Minister Robert Schuman which laid the foundations for the European Union. This was an exceptional event in support of the fight […]

Read more