You and the disease
Leukodystrophy in your everyday life
Leukodystrophy is a rare genetic disease which is serious, progressive, incapacitating and particularly destructive. It profoundly disrupts the lives both of those affected and those close to them.
This is why you will have to approach agencies and services which you may have been totally unaware of until now. Although we cannot hope to answer all your questions here we can provide information to help you understand as completely as possible your rights and obligations as a whole.
The services of the Network of Aid and Information on Leukodystrophies (NAIL) are at your disposal to offer support and respond in the best way possible to your personal situation and requirements.