The ELA association publishes a quarterly journal “ELA News” published since 1993.
It is available on subscription costs € 16. The journal is also disseminated to health professionals and institutions. She provided an update every three months on the news related to the missions of ELA.
Its role is to:
- Provide an account of the Association’s actions in pursuit of its social aims,
- Disseminate information about medical advances and medical and social developments,
- Be a link between families affected by leukodystrophy or a myelin disease
The latest edition of ELA Infos in french can be consulted on line and the archives are also available for consultation.