Media

Contacts presse :

Linda TAORMINA – 01 71 72 28 18 – [email protected]

 

The key moment of ELA :

  • Creating ELA in 1992
  • The association is recognized as a public utility by decree of 13 November 1996
  • Creation of the ELA Research Foundation in 2005

Numbers and ELA :

  • Each week in France 3-6 children born with leukodystrophy
  • 2.9 million students have participated in the campaign “Mets tes baskets” … since its launch in 1994
  • Since its inception, the operation “Mets tes baskets” … has raised € 17.1 million
  • € 5.9 million was spent on helping families since the creation of ELA
  • Since 1992, ELA has funded 414 research programs for a total of € 32.8 million