How to fight leukodystrophies?
Since its creation, ELA has been supporting research for leukodystrophies and myelin disorders. To date, 414 research projects amounting to 32,8 million Euros have been funded.
In order to keep families well informed, the ELA Foundation organizes an annual symposium dedicated to patients and their families. This is an event where specialists can present, in lay terms, the scientific developments in the field of leukodystrophy and are available to answer any questions the families may have. It represents a unique opportunity for exchange between patients and researchers.
ELA is currently setting up a Documentation Centre for leukodystrophy and myelin disorders at the ‘Centre Européen de la Myéline’ (European Myelin Centre). This will serve as a centre for the dissemination of scientific and medical information for doctors, research scientists and for all those whose lives are affected by these diseases.